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Toronto family of child with ultra-rare disease urges public to take Covid-19 seriously

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globalnews.ca

In an east Toronto home, like so many others across the city and country, the Pirovolakis family is finding ways to pass the time and keep the children entertained.

The difference though, for this family of five, is that its situation during this coronavirus pandemic is far more precarious than most. “We have to be extra careful with Michael because he has some underlying conditions and this could really be a life or death situation for him,” explained Georgia Kumaritakis.

The couple’s youngest child has an ultra-rare neuro-degenerative disease called Spastic Paraplegia Type 50 or SPG50, for short.

When Global News first met the family in summer 2019, the reality of having a child like Michael was just setting in. “There was no hope, no

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