“Autism Registry Fears Are Prompting Patients to Cancel Appointments”
The following is a personal essay that reflects the opinions and experiences of its author.June 12, 2025In the weeks since officials from the U.S.
Department of Health and Human Services (HHS) first announced plans to create an autism registry — then subsequently dubbed its efforts a national “data platform” to “uncover the root causes of autism” — providers like myself have witnessed a notable effect on patients seeking care.As a clinical psychologist, I specialize in diagnosing and supporting neurodivergent adults.
But my clients tell me that they’re cancelling their kids’ pending evaluations for autism, ADHD, or other conditions in other clinics, citing HHS database fears.
I’ve also received emails asking whether it’s safe to seek or obtain a diagnosis given the current political climate.A colleague who diagnoses autism and ADHD in adults reports that people on the practice’s waitlist have been cancelling their appointments, and that no-shows have increased since news of the HHS registry first broke.
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United States
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Cases: 46 252 513
Deaths: 750 423
Recovered: 0
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India
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Cases: 34 321 025
Deaths: 459 652
Recovered: 0
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Brazil
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Cases: 21 835 785
Deaths: 608 235
Recovered: 0
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United Kingdom
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Cases: 9 215 683
Deaths: 141 607
Recovered: 0
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Russia
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Cases: 8 494 589
Deaths: 237 619
Recovered: 0
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